One woman's musings on being well while living with MS, and the joy of growing, cooking and eating great food.
Saturday, October 30, 2010
How virgin is our extra virgin olive oil?
In order to minimise my MS, I have recently started following the Overcoming MS approach. This includes a diet with very limited saturated and altered fats, which means a shift to cold-pressed oils and pretty much exclusive use of extra virgin olive oil for cooking purposes. Imagine my surprise to read Choice Magazine's rather damning review of the 'virgin' status of many extra virgin olive oils on the Australian market. The facts are here. Thanks to Robskee for pointing this out. I am going to rethink my consumption choices (yet again - sigh) based on this information.
Wednesday, October 27, 2010
Dosing up
So, last night I took my first full dose of Rebif, the drug of my neurologist's choice to assist with minimising the progression of my MS. Rebif is one of a class of beta interferons - proteins that are produced by our bodies to kickstart our immune system responses. I have to inject it three times a week using a very groovy automated device that makes robot noises and lives in my fridge between shots. The side effects of this medication, which are experienced by the majority of its users, include flu symptoms, needle site infections and necrosis. Hey, it could be a lot worse. One of the medications my neuro suggested I consider has a higher success rate than Rebif, but can also result in a fried brain. Hmmm, I passed on that one. Anyway, so far, it seems I am in the small category of lucky folk who don't experience significant side effects. Apart from the odd lump and bump, it's been smooth sailing thus far. But, is it doing me any good? Who knows.
This is my first foray into taking serious medicine on a sustained basis. The jury is out for me on whether this will be a lifelong commitment. I don't really mind the injections (although, travelling with a virtual fridge by my side is going to be a bitch), but I'm not yet convinced that the available medical responses are quite the ticket for a life free of MS symptoms. Anyhoo, more on that another time. What has creeped me out about this whole experience is the pervasiveness of the drug industry the minute I was confronted with intervention choices. My neurologist told me about the available drugs but strongly recommended this one. He's the expert, right? So, I went with that. Soon after, the 'community nurse' dropped round for a visit. She is employed by the drug agency. She was very nice and she told me her job was to help me get used to taking the drugs. Nanoseconds later (and I'm not sure if this was a freudian slip or just a boutof honesty), she told me her main job is to make me stay on the drug. Durr! What I found more alarming than this was that my neuro and the nurse could have been reading from the same script in terms of how they described the drug, the side effects and the benefits. It made me wonder, just who does this doctor work for?! Anyway, paranoid responses aside, this is a whole new world and one I'm not sure I like at all.
This is my first foray into taking serious medicine on a sustained basis. The jury is out for me on whether this will be a lifelong commitment. I don't really mind the injections (although, travelling with a virtual fridge by my side is going to be a bitch), but I'm not yet convinced that the available medical responses are quite the ticket for a life free of MS symptoms. Anyhoo, more on that another time. What has creeped me out about this whole experience is the pervasiveness of the drug industry the minute I was confronted with intervention choices. My neurologist told me about the available drugs but strongly recommended this one. He's the expert, right? So, I went with that. Soon after, the 'community nurse' dropped round for a visit. She is employed by the drug agency. She was very nice and she told me her job was to help me get used to taking the drugs. Nanoseconds later (and I'm not sure if this was a freudian slip or just a boutof honesty), she told me her main job is to make me stay on the drug. Durr! What I found more alarming than this was that my neuro and the nurse could have been reading from the same script in terms of how they described the drug, the side effects and the benefits. It made me wonder, just who does this doctor work for?! Anyway, paranoid responses aside, this is a whole new world and one I'm not sure I like at all.
Banana and pecan loaf
For the last six weeks, I have been adapting my diet to align with George Jelinek's Overcoming MS approach. This basically means a whole foods plant and fish based diet extremely low in saturated and altered fats. The science is explained in his book and summarized here. So far, I'm doing pretty well. It's only the baking that I'm having trouble getting my head around. So, I was very happy last night to produce this tasty and easy banana and pecan loaf.

1cup self raising flour
1/3 cup brown sugar
2 tablespoons golden syrup
1 shot espresso
2 ripe medium bananas
1 egg white
1 tablespoon extra virgin olive oil (supermarket brand is best as this is the least flavoured and aromatic)
1/2 cup chopped pecans
Pinch of salt
Line a loaf tin and preheat oven to 180 degrees c.
Mash bananas and steep in espresso for about 10 minutes. Add golden syrup and sugar and mix well.
Add oil, egg white, flour and salt and mix until just combined. Fold in nuts.
Pour into tin and cook for 35 minutes or until skewer comes out clean.
Turn out and don't burn your fingers rushing for the first piece.

1cup self raising flour
1/3 cup brown sugar
2 tablespoons golden syrup
1 shot espresso
2 ripe medium bananas
1 egg white
1 tablespoon extra virgin olive oil (supermarket brand is best as this is the least flavoured and aromatic)
1/2 cup chopped pecans
Pinch of salt
Line a loaf tin and preheat oven to 180 degrees c.
Mash bananas and steep in espresso for about 10 minutes. Add golden syrup and sugar and mix well.
Add oil, egg white, flour and salt and mix until just combined. Fold in nuts.
Pour into tin and cook for 35 minutes or until skewer comes out clean.
Turn out and don't burn your fingers rushing for the first piece.
Tuesday, October 26, 2010
What does it feel like to have MS?
MS is such a variable disease, that no one person can describe what it's like. All of us who have it are looking at different combinations of symptoms and different trajectories for progression. For those of us with the relapsing-remitting kind (as distinct from the progressive kind), having MS can feel dramatically different from day to day. For me, today, MS feels like a small electrical fire has started in my right foot and is creeping its way up my leg. Thankfully, today, MS for me doesn't feel like vision impairment, cognitive problems and extreme fatigue. Here's hoping for tomorrow, and the next day....
Living in the now
I am currently on Day 16 of the Chopra Centre's 21 day meditation challenge. Apart from sounding disturbingly like some kind of reality tv show spin-off, this has been a great experience. Every day, I tune in for a guided meditation; 10 minutes or so to breathe, be mindful of self and surroundings, and be in stillness and silence. There is much to be said for stopping doing in order to be for a short time every day.
This is Ziggy, the three legged Ancient. He lives in the now pretty much all the time.
This is Ziggy, the three legged Ancient. He lives in the now pretty much all the time.
Sunday, October 24, 2010
Twitching
We have been enjoying some wonderful birds in our garden of late. Being from southern parts, I still marvel at the sheer scope of biodiversity that is, literally, in one's face in a Queensland backyard. One of my favourites at the moment is a pair of fig birds, who have been chowing down on the berries in a palm tree that overlooks our front deck. The male is particularly fetching, sporting an olive back, yellow belly and a wonderful red 'zorro-mask'. I could look at him all day!
Saturday, October 23, 2010
Reframing
Today, I ran for 30 minutes on the cross-trainer and burned 200 calories. I then did 3 sets of 12 repetitions on 3 upper body weight machines. This is about 25% of what I was able to do 3 months ago. But, more importantly, it's about 35% more than I could do last Wednesday, and 100% more than I could do two weeks ago. As I was struggling along on the cross-trainer this afternoon, I was feeling the self-pity levels going up (I gave up the cross-trainer months ago, when I braved the possibilities of running on the treadmill, and hadn't looked back til MS came to visit). So, I had a stern word to myself and decided to reframe. 'What's good about the cross-trainer and not being able to do everything I could do 3 months ago?', I asked myself. Well, the most obvious thing is that I can use it! If I got on a treadmill right now, the lower body weakness and almost imperceptible muscle tremors I have would see me on my arse (or, worse, my face) pretty quickly. But there are other good things about it. The cross-trainer works my arms as well as my legs, so my upper body is getting a better workout than it has for ages. On this note, because of the unsteadiness in my legs, I am also doing more weight training. Frankly, my arms are looking pretty cut! And the other great thing (which I didn't find out until later) is that, an hour after my workout, I was well enough to wash my hair, cook my dinner, and empty the dishwasher. There's no way I could have done all that just two weeks ago. I am reframing. Thiings are definitely looking up today.
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